Bobby Jones Chiari & Syringomyelia Foundation

As we count down the last couple of days of 2020, there is little time left to make an impact this year. It’s so critical that we can count on you now! Your year-end tax-deductible gift will help us bring hope to the over 3 million adults and children, in the United States alone, who are struggling every day and hoping for a cure. Thank you for giving a gift of hope!... Donate here: https://www.classy.org/campaign/2020-end-of-year/c317183

Join us: https://give.classy.org/adults126 #chiari #chiarisupport #syringomyelia #supportgroup #EDS #EDSsupport

Check out our ED, Dorothy Poppe, on this awesome Chiari Malformations Roundtable with Dr. Ellenbogen of Seattle Children's Hospital featuring Dr. Grant as the keynote speaker! Register and learn more: https://bobbyjonescsf.org/events/ #chiari #neurosurgery

Sign on for a small lecture and then ask questions from Expert, Dr. Brian Dlouhy, about Chiari and CCI from Bony and Ligamentous Abnormalities. REGISTER: https://give.classy.org/askexpert121 #chiari #cci #craniocervicalinstability #instability

Making our way across the country! Help us fill up this map for 2021...virtual, in-person, and solo walk options available - whichever option allows you to stay safe while having fun. Register here: https://bobbyjonescsf.org/unitenight/... Thank you to all chairpersons who have already registered! #2021 #uniteatnight #hopeonthehorizon #chiariwalk #syringomyeliawalk #EDSwalk #potswalk #covidsafe

Check out our first Ask the Expert FOR CHILDREN! Krystal Tomei, MD, MPH explains in a cool, fun way what exactly is going on inside the body when you have a #Chiari and #syringomyelia. https://youtu.be/Teyt2Uvdo94 #chiarikids #UHCLEneurosurgery

Take advantage of your free time! Connect with others, vent a little, get some tips on how to get through your next semester... REGISTER: https://give.classy.org/hscollege117... #support #chiari #syringomyelia #EDS #POTs #highschoolsupport #collegesupport #peersupport